This is the position Cameron has been in since we got home Friday at 5:00pm. We arrived at MGH at 8:00 am. Cameron was taken back and put on a small pair of hospital pants and a johnny. They took his vitals and asked us all the usuaul questions, they let him go back out into the waiting room where all th etoys were. By this point he knew something was up and didn't want to play anymore, They called us back into a room where brian and I put on hospital gowns, booties, and hair nets. We were then taken back to a room where we met the anestesiologist. we signed all the consent forms and the anestesiologist decided to give Cameron some meds by mouth to help him calm down. within about 5 minutes cameron was smiling and laughing. you could see that his eyes weren't focusing on anything, they walked us across the hall to the operating room where they had me lay him on the table. They put a mask on his face and within a few breaths he was asleep. By far this is the worst part, you have to leave your child in the hands of other people all the while having the image of your child with his eyes rolled back in his headand for all intents and purposes looking dead. we were allowed to take our masks down to give him a kiss and then were escorted out of the room. Yes this is when I broke down, this wasn't a huge surgery but all the bad thoughts go through your head like, what if he doesn't wake up, or his heart stops. Pushing all the emotions aside Brian and I went to the cafeteria, they had our cell phone number and told us they would be in touch with us during the surgery (something they never did) He went in for surgery at 10:00 and at 1:30 the doctor took us into the family room where he told us the surgery went well. about 45 minutes later we were taken back to see him. He was still asleep and still had all the monitors on him. Not an image I liked seeing. about 5 minutes after we were there he woke quite suddenly trying to stand up in the crib. he sat with me for a while, while the anesthesia wore off. He had a spinal block so he wouldn;t feel any pain in the area. we were given the home care instructions, which included the care for the stent that was left in place and won't come out until Thursday, changing his diaper hasn't been fun! We came home gave him some tylenol with Codine and he went to bed early. he woke up every couple of hours, I finally took him into bed with us he slept a little better.
Saturday he was pretty miserable. My sister and Dave took Brady for the day which was a big help. by saturday night he seemed much better. Today (sunday) he seemed a little worse again, we have been monitorin a fever that has gotten up to 100.5. we're supposed to call the doctor if goes up to 101. We are praying that the fever stays at bay and that nothing is wrong. This has been tough on both of us but we are glad that we are having it fixed now, We couldn't imagine having this done at the age of three!
We want to thank everyone for all the well wishes and a big thank you to Brian's parents for taking Brady over night the day before the surgery, and thank you to Shanna and dave for taking brady the day after the surgery. You all made our lives alot easier!
The other day when it wasn't too cold out we decided to let the kids go play in the snow on the deck. Cameron was quite mad that he couldn't go though. We thought since he still had the stent in it wasn't a good idea.
This is the position Cameron has been in since we got home Friday at 5:00pm. We arrived at MGH at 8:00 am. Cameron was taken back and put on a small pair of hospital pants and a johnny. They took his vitals and asked us all the usuaul questions, they let him go back out into the waiting room where all th etoys were. By this point he knew something was up and didn't want to play anymore, They called us back into a room where brian and I put on hospital gowns, booties, and hair nets. We were then taken back to a room where we met the anestesiologist. we signed all the consent forms and the anestesiologist decided to give Cameron some meds by mouth to help him calm down. within about 5 minutes cameron was smiling and laughing. you could see that his eyes weren't focusing on anything, they walked us across the hall to the operating room where they had me lay him on the table. They put a mask on his face and within a few breaths he was asleep. By far this is the worst part, you have to leave your child in the hands of other people all the while having the image of your child with his eyes rolled back in his headand for all intents and purposes looking dead. we were allowed to take our masks down to give him a kiss and then were escorted out of the room. Yes this is when I broke down, this wasn't a huge surgery but all the bad thoughts go through your head like, what if he doesn't wake up, or his heart stops. Pushing all the emotions aside Brian and I went to the cafeteria, they had our cell phone number and told us they would be in touch with us during the surgery (something they never did) He went in for surgery at 10:00 and at 1:30 the doctor took us into the family room where he told us the surgery went well. about 45 minutes later we were taken back to see him. He was still asleep and still had all the monitors on him. Not an image I liked seeing. about 5 minutes after we were there he woke quite suddenly trying to stand up in the crib. he sat with me for a while, while the anesthesia wore off. He had a spinal block so he wouldn;t feel any pain in the area. we were given the home care instructions, which included the care for the stent that was left in place and won't come out until Thursday, changing his diaper hasn't been fun! We came home gave him some tylenol with Codine and he went to bed early. he woke up every couple of hours, I finally took him into bed with us he slept a little better.
